Collaborative Data Sharing and Use: How to use and share cross-sector data for overdose prevention among your partners
A PHAST enables different sectors that encounter the overdose crisis in different ways to “connect the dots” and understand how various agencies and systems can work together to reduce overdose deaths. This module offers PHAST data and information-sharing activities designed to develop a shared understanding of the local overdose crisis and to learn from one another’s experiences with people who have overdosed or are at-risk for overdose.
Both aggregate and case-level data can be used to answer key questions about the local overdose crisis. Aggregate or population-level data typically are used to answer key investigation questions.
Case-level data are used for conducting overdose fatality reviews (OFR), post-overdose outreach, or establishing linkages to care. Case-level data may also be used to link or combine datasets to investigate population-level overdose risks and trends.
Open discussions about what data are needed for what purposes can help PHAST partners address knowledge gaps and mutually agreed upon solutions to move their work forward.
For example, non-fatal overdose data from first responders may be used as aggregate-level data or case-level data to answer different key questions about the local overdose crisis (See Table 5 in the PHAST Toolkit for more examples):
Data | Uses for Aggregate Data (non- identifiable) | Uses for Case-level Data (possibly requiring data use or data sharing agreements) |
---|---|---|
Non-fatal overdose data from first responders | Track overdose rates over time
Monitor rates of naloxone administration by first responders Identify high-burden/priority areas, neighborhoods Track enforcement of 911 Good Samaritan Laws (police data on dispositions) Track ambulatory transfer rate post-reversal with naloxone |
Conduct post-overdose outreach/follow-up support for harm reduction and linkage to care
Identify overdose-related trends among people: – Under community corrections supervision – Previously incarcerated – Experiencing homelessness – Lost custody of a child Track repeat overdoses to focus intervention efforts |
Assessing partners’ shared understanding of substance use disorders (SUDs) and the overdose crisis can help a PHAST determine what knowledge gaps may need to be addressed to facilitate effective multi-sector collaboration. Partners may review the questions below and then determine where additional discussion or resources may be beneficial.
What is our current shared understanding about:
For a list of resources on each of these topics, please see the Resources Table on SUDs and the Overdose Crisis.
Partners may work together to determine which key investigation questions can be answered with available data. Through this process, PHAST partners can increase their collective understanding of the local crisis and establish an inventory of available data and identify data gaps.
For each question, PHAST members are encouraged to identify which partner (and agency) can answer the question with the data they collect or manage.
Key Investigation Questions to discuss among all PHAST partners:
If questions cannot be answered, partners may brainstorm and prioritize potential data sources that may be used to answer these questions.
Use the Data Inventory Table, to track your jurisdiction’s data availability and record next steps for obtaining, sharing, and using local data.
After working through the key investigation questions, a PHAST may discover critical data gaps. If this is the case, PHASTs may decide to invite additional partners that are stewards of key data sets to join their PHAST and provide access to new data sources.
If your PHAST has identified a critical data gap, you may consider using or discussing the benefits of using the following approaches:
More information about these approaches can be found on pages 40-46 in the PHAST Toolkit.
Simple data sharing is the most basic and fundamental way data can be used at the local level to develop a shared understanding of the overdose crisis. It typically involves each agency or set of agencies that collect data in disparate ways, sharing aggregate data.
With the help of your PHAST data analyst(s), partners can attend data presentations and learn:
PHASTs may bring in guest speakers who can describe existing programs or interventions already underway in the jurisdiction or elsewhere. Part of the collaborative learning process may also involve developing shared terminology, addressing stigma, and learning about local contextual factors as well as existing prevention programs and resources. Potential topics include:
Data analysis results and presentations are intended to serve not only as a method of “reporting out” updates to partners but also a catalyst for data-driven discussions. Follow the guidance below to build capacity of the PHAST to interpret data together.
With a comprehensive understanding, discussions can then move to systems-level problem-solving.
As partners share data with one another about the local overdose crisis, one key question to keep in mind is, “What does this mean?”
Often, data may reveal gaps, needs, or barriers in the community. Following each data presentation or data sharing activity, PHASTs are encouraged to collectively identify:
Suggested discussion questions include:
At the end of each discussion, partners should have a shared understanding of local needs, gaps, and barriers relevant to the data that were shared.
By connecting data to its broader implications, data sharing will become more purposeful, partners will be better prepared to make sense of the evidence, and the PHAST will be primed to connect insights to action.
Both aggregate and case-level data can be used to answer key questions about the local overdose crisis. Aggregate or population-level data typically are used to answer key investigation questions.
Case-level data are used for conducting overdose fatality reviews (OFR), post-overdose outreach, or establishing linkages to care. Case-level data may also be used to link or combine datasets to investigate population-level overdose risks and trends.
Open discussions about what data are needed for what purposes can help PHAST partners address knowledge gaps and mutually agreed upon solutions to move their work forward.
For example, non-fatal overdose data from first responders may be used as aggregate-level data or case-level data to answer different key questions about the local overdose crisis (See Table 5 in the PHAST Toolkit for more examples):
Data | Uses for Aggregate Data (non- identifiable) | Uses for Case-level Data (possibly requiring data use or data sharing agreements) |
---|---|---|
Non-fatal overdose data from first responders | Track overdose rates over time
Monitor rates of naloxone administration by first responders Identify high-burden/priority areas, neighborhoods Track enforcement of 911 Good Samaritan Laws (police data on dispositions) Track ambulatory transfer rate post-reversal with naloxone |
Conduct post-overdose outreach/follow-up support for harm reduction and linkage to care
Identify overdose-related trends among people: – Under community corrections supervision – Previously incarcerated – Experiencing homelessness – Lost custody of a child Track repeat overdoses to focus intervention efforts |
Assessing partners’ shared understanding of substance use disorders (SUDs) and the overdose crisis can help a PHAST determine what knowledge gaps may need to be addressed to facilitate effective multi-sector collaboration. Partners may review the questions below and then determine where additional discussion or resources may be beneficial.
What is our current shared understanding about:
For a list of resources on each of these topics, please see the Resources Table on SUDs and the Overdose Crisis.
Partners may work together to determine which key investigation questions can be answered with available data. Through this process, PHAST partners can increase their collective understanding of the local crisis and establish an inventory of available data and identify data gaps.
For each question, PHAST members are encouraged to identify which partner (and agency) can answer the question with the data they collect or manage.
Key Investigation Questions to discuss among all PHAST partners:
If questions cannot be answered, partners may brainstorm and prioritize potential data sources that may be used to answer these questions.
Use the Data Inventory Table, to track your jurisdiction’s data availability and record next steps for obtaining, sharing, and using local data.
After working through the key investigation questions, a PHAST may discover critical data gaps. If this is the case, PHASTs may decide to invite additional partners that are stewards of key data sets to join their PHAST and provide access to new data sources.
If your PHAST has identified a critical data gap, you may consider using or discussing the benefits of using the following approaches:
More information about these approaches can be found on pages 40-46 in the PHAST Toolkit.
Simple data sharing is the most basic and fundamental way data can be used at the local level to develop a shared understanding of the overdose crisis. It typically involves each agency or set of agencies that collect data in disparate ways, sharing aggregate data.
With the help of your PHAST data analyst(s), partners can attend data presentations and learn:
PHASTs may bring in guest speakers who can describe existing programs or interventions already underway in the jurisdiction or elsewhere. Part of the collaborative learning process may also involve developing shared terminology, addressing stigma, and learning about local contextual factors as well as existing prevention programs and resources. Potential topics include:
Data analysis results and presentations are intended to serve not only as a method of “reporting out” updates to partners but also a catalyst for data-driven discussions. Follow the guidance below to build capacity of the PHAST to interpret data together.
With a comprehensive understanding, discussions can then move to systems-level problem-solving.
As partners share data with one another about the local overdose crisis, one key question to keep in mind is, “What does this mean?”
Often, data may reveal gaps, needs, or barriers in the community. Following each data presentation or data sharing activity, PHASTs are encouraged to collectively identify:
Suggested discussion questions include:
At the end of each discussion, partners should have a shared understanding of local needs, gaps, and barriers relevant to the data that were shared.
By connecting data to its broader implications, data sharing will become more purposeful, partners will be better prepared to make sense of the evidence, and the PHAST will be primed to connect insights to action.
Appendix C3: Sample PHAST Quarterly Meeting Agenda
Appendix C4: Data Inventory Table
Appendix D1: Examples of Critical Intervention Points for Change: Opioid Mapping
Appendix E1: Resources Table on SUDs and the Overdose Crisis
The Science of Drug Use and Addiction
Killing Pain Series
Drugs, Brains, and Behavior: The Science of Addiction
Stigma of Addiction and Its Impact
Stigma-reducing language
Words Matter - Terms to avoid or use when talking about addiction
Harm Reduction Principles
Drug Policy Alliance: Harm Reduction 101
National Harm Reduction Coalition: Principles of Harm Reduction
Compassion Fatigue and the Need for Responder Wellness
Code 9 Project
The Code Green Campaign
Tips for Emergency Responders
Factors that Contribute to the Overdose Crisis
Social Determinants of Health | AHA
Addressing the Opioid Crisis through Social Determinants of Health: What Are Communities Doing?
NACCHO: Health Equity in Response to Drug Overdose
Medication for Opioid Use Disorder (MOUD)/ Medication Assisted Treatment (MAT)
SAMHSA: Medication Assisted Treatment
National Harm Reduction Coalition: MOUD Overview